# | Title | Journal | Year | Citations |
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1 | Cerebral small vessel disease genomics and its implications across the lifespan | Nature Communications | 2020 | 89 |
2 | Has the biobank bubble burst? Withstanding the challenges for sustainable biobanking in the digital era | BMC Medical Ethics | 2016 | 81 |
3 | Global Public Perceptions of Genomic Data Sharing: What Shapes the Willingness to Donate DNA and Health Data? | American Journal of Human Genetics | 2020 | 76 |
4 | Trust in genomic data sharing among members of the general public in the UK, USA, Canada and Australia | Human Genetics | 2019 | 69 |
5 | The Impact of Commercialisation and Genetic Data Sharing Arrangements on Public Trust and the Intention to Participate in Biobank Research | Public Health Genomics | 2015 | 60 |
6 | Verification of consumers' experiences and perceptions of genetic discrimination and its impact on utilization of genetic testing | Genetics in Medicine | 2009 | 52 |
7 | Community Engagement for Big Epidemiology: Deliberative Democracy as a Tool | Journal of Personalized Medicine | 2014 | 49 |
8 | Ethics review for international data-intensive research | Science | 2016 | 44 |
9 | Demonstrating trustworthiness when collecting and sharing genomic data: public views across 22 countries | Genome Medicine | 2021 | 39 |
10 | Trust, patents and public perceptions: the governance of controversial biotechnology research | Nature Biotechnology | 2006 | 38 |
11 | Predicting Public Attitudes Toward Gene Editing of Germlines: The Impact of Moral and Hereditary Concern in Human and Animal Applications | Frontiers in Genetics | 2018 | 38 |
12 | Genetic discrimination by Australian insurance companies: a survey of consumer experiences | European Journal of Human Genetics | 2020 | 29 |
13 | Members of the public in the USA, UK, Canada and Australia expressing genetic exceptionalism say they are more willing to donate genomic data | European Journal of Human Genetics | 2020 | 29 |
14 | Equitable Expanded Carrier Screening Needs Indigenous Clinical and Population Genomic Data | American Journal of Human Genetics | 2020 | 24 |
15 | Public trust and global biobank networks | BMC Medical Ethics | 2020 | 23 |
16 | Investigating genetic discrimination in the Australian life insurance sector: the use of genetic test results in underwriting, 1999-2003 | Journal of Law & Medicine | 2007 | 22 |
17 | To Know or Not to Know: An Update of the Literature on the Psychological and Behavioral Impact of Genetic Testing for Alzheimer Disease Risk | Genetic Testing and Molecular Biomarkers | 2012 | 21 |
18 | Should Australia Ban the Use of Genetic Test Results in Life Insurance? | Frontiers in Public Health | 2017 | 20 |
19 | Establishing the International Genetic Discrimination Observatory | Nature Genetics | 2020 | 18 |
20 | Attitudes of the general public towards the disclosure of individual research results and incidental findings from biobank genomic research in Australia | Internal Medicine Journal | 2015 | 17 |
21 | Key challenges in bringing CRISPR-mediated somatic cell therapy into the clinic | Genome Medicine | 2017 | 17 |
22 | Marking Shifts in Human Research Ethics in the Development of Biobanking | Public Health Ethics | 2015 | 16 |
23 | The Use of Legal Remedies in Australia for Pursuing Allegations of Genetic Discrimination: Findings of an Empirical Study | International Journal of Discrimination and the Law | 2007 | 15 |
24 | Australia: regulating genomic data sharing to promote public trust | Human Genetics | 2018 | 14 |
25 | Genetics, Insurance and Professional Practice: Survey of the Australasian Clinical Genetics Workforce | Frontiers in Public Health | 2018 | 13 |
26 | New avenues within community engagement: addressing the ingenuity gap in our approach to health research and future provision of health care | Journal of Responsible Innovation | 2014 | 12 |
27 | Genomics in research and health care with Aboriginal and Torres Strait Islander peoples | Monash Bioethics Review | 2015 | 11 |
28 | Moving Forward on Consent Practices in Australia | Journal of Bioethical Inquiry | 2018 | 11 |
29 | International Divergence in Gene Patenting | Annual Review of Genomics and Human Genetics | 2019 | 11 |
30 | Identifying the nature and extent of public and donor concern about the commercialisation of biobanks for genomic research | European Journal of Human Genetics | 2021 | 10 |
31 | To share or not to share is the question | Applied & Translational Genomics | 2014 | 9 |
32 | Are the gene-patent storm clouds dissipating? A global snapshot | Nature Biotechnology | 2015 | 9 |
33 | Streamlining ethical review of data intensive research | BMJ, The | 2016 | 9 |
34 | The Genetic Discrimination Observatory: confronting novel issues in genetic discrimination | Trends in Genetics | 2021 | 9 |
35 | Pharmacogenetic testing: legal considerations for consent, privacy and disclosure | Personalized Medicine | 2008 | 8 |
36 | Continental drift? Do European clinical genetic testing laboratories have a patent problem? | European Journal of Human Genetics | 2019 | 8 |
37 | Return of genomic results does not motivate intent to participate in research for all: Perspectives across 22 countries | Genetics in Medicine | 2022 | 8 |
38 | Donor Perspectives on Issues Associated with Donation of Genetic Samples and Information: An Australian Viewpoint | Journal of Bioethical Inquiry | 2007 | 7 |
39 | Patenting nature—a comparative perspective | Journal of Law and the Biosciences | 2018 | 7 |
40 | Provenance and risk in transfer of biological materials | PLoS Biology | 2018 | 7 |
41 | Personalised medicine in the genome era | Journal of Law & Medicine | 2013 | 5 |
42 | Navigating the molecular diagnostic patent landscape | Expert Opinion on Therapeutic Patents | 2008 | 4 |
43 | Regulation of unregistered birth workers in Australia: Homebirth and public safety | Women and Birth | 2018 | 3 |
44 | Enhancing early detection of cognitive impairment in the criminal justice system: feasibility of a proposed method | Current Issues in Criminal Justice | 2019 | 3 |
45 | Legal and ethical context of next generation sequencing (NGS) | Pathology | 2012 | 1 |
46 | Human Research Ethics Guidelines in Australia | The International Library of Ethics, Law and Technology | 2016 | 1 |
47 | The Regulatory Framework for Protection of Genetic Privacy in Australia | | 2013 | 1 |
48 | Surrogacy: is there a case for legal prohibition? | Journal of Law & Medicine | 2004 | 1 |
49 | Disclosure of Genetic Results to At-risk Relatives without Consent: Issues for Health Care Professionals in Australia | Journal of Law & Medicine | 2019 | 1 |
50 | Unconventional Practice, "Innovative" Interventions and the National Law | Journal of Law & Medicine | 2020 | 1 |