# | Title | Journal | Year | Citations |
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1 | GRIPP2 reporting checklists: tools to improve reporting of patient and public involvement in research | Research Involvement and Engagement | 2017 | 589 |
2 | Framework, principles and recommendations for utilising participatory methodologies in the co-creation and evaluation of public health interventions | Research Involvement and Engagement | 2019 | 217 |
3 | Patients’, clinicians’ and the research communities’ priorities for treatment research: there is an important mismatch | Research Involvement and Engagement | 2015 | 205 |
4 | ‘Is it worth doing?’ Measuring the impact of patient and public involvement in research | Research Involvement and Engagement | 2015 | 201 |
5 | A patient and public involvement (PPI) toolkit for meaningful and flexible involvement in clinical trials – a work in progress | Research Involvement and Engagement | 2016 | 140 |
6 | Patient and Public Engagement in Integrated Knowledge Translation Research: Are we there yet? | Research Involvement and Engagement | 2019 | 106 |
7 | The prevalence of patient engagement in published trials: a systematic review | Research Involvement and Engagement | 2018 | 101 |
8 | Designing a tool to support patient and public involvement in research projects: the Involvement Matrix | Research Involvement and Engagement | 2020 | 97 |
9 | The extent, quality and impact of patient and public involvement in primary care research: a mixed methods study | Research Involvement and Engagement | 2018 | 87 |
10 | The impact of public involvement in health research: what are we measuring? Why are we measuring it? Should we stop measuring it? | Research Involvement and Engagement | 2020 | 85 |
11 | Including patients in core outcome set development: issues to consider based on three workshops with around 100 international delegates | Research Involvement and Engagement | 2016 | 84 |
12 | Giving voice to older adults living with frailty and their family caregivers: engagement of older adults living with frailty in research, health care decision making, and in health policy | Research Involvement and Engagement | 2016 | 78 |
13 | Learning as an outcome of involvement in research: what are the implications for practice, reporting and evaluation? | Research Involvement and Engagement | 2019 | 77 |
14 | Power to the people: To what extent has public involvement in applied health research achieved this? | Research Involvement and Engagement | 2016 | 72 |
15 | Involving service users in the qualitative analysis of patient narratives to support healthcare quality improvement | Research Involvement and Engagement | 2019 | 72 |
16 | Patient and public involvement in primary care research - an example of ensuring its sustainability | Research Involvement and Engagement | 2016 | 71 |
17 | A generative co-design framework for healthcare innovation: development and application of an end-user engagement framework | Research Involvement and Engagement | 2021 | 71 |
18 | A framework for public involvement at the design stage of NHS health and social care research: time to develop ethically conscious standards | Research Involvement and Engagement | 2017 | 69 |
19 | Sharpening the focus: differentiating between focus groups for patient engagement vs. qualitative research | Research Involvement and Engagement | 2018 | 65 |
20 | Learning to work together – lessons from a reflective analysis of a research project on public involvement | Research Involvement and Engagement | 2017 | 64 |
21 | Using qualitative Health Research methods to improve patient and public involvement and engagement in research | Research Involvement and Engagement | 2018 | 63 |
22 | From tokenism to meaningful engagement: best practices in patient involvement in an EU project | Research Involvement and Engagement | 2015 | 58 |
23 | Biobanking from the patient perspective | Research Involvement and Engagement | 2015 | 57 |
24 | Patient involvement in guidelines is poor five years after institute of medicine standards: review of guideline methodologies | Research Involvement and Engagement | 2017 | 56 |
25 | Advancing Care for Family Caregivers of persons with dementia through caregiver and community partnerships | Research Involvement and Engagement | 2018 | 56 |
26 | The patient voice in research—evolution of a role | Research Involvement and Engagement | 2016 | 52 |
27 | Patients and public are important stakeholders in health technology assessment but the level of involvement is low – a call to action | Research Involvement and Engagement | 2021 | 52 |
28 | One small step… | Research Involvement and Engagement | 2015 | 51 |
29 | Enhancing the incorporation of the patient’s voice in drug development and evaluation | Research Involvement and Engagement | 2018 | 51 |
30 | Researchers, patients, and other stakeholders’ perspectives on challenges to and strategies for engagement | Research Involvement and Engagement | 2020 | 51 |
31 | Innovating public engagement and patient involvement through strategic collaboration and practice | Research Involvement and Engagement | 2019 | 49 |
32 | The impact of patient involvement in research: a case study of the planning, conduct and dissemination of a clinical, controlled trial | Research Involvement and Engagement | 2020 | 48 |
33 | Patients’ perspectives can be integrated in health technology assessments: an exploratory analysis of CADTH Common Drug Review | Research Involvement and Engagement | 2016 | 47 |
34 | Combining PPI with qualitative research to engage ‘harder-to-reach’ populations: service user groups as co-applicants on a platform study for a trial | Research Involvement and Engagement | 2016 | 47 |
35 | Guidance on authorship with and acknowledgement of patient partners in patient-oriented research | Research Involvement and Engagement | 2020 | 47 |
36 | Patient and public involvement in reducing health and care research waste | Research Involvement and Engagement | 2018 | 46 |
37 | Public involvement in health research: what does ‘good’ look like in practice? | Research Involvement and Engagement | 2020 | 46 |
38 | Exploring the challenge of health research priority setting in partnership: reflections on the methodology used by the James Lind Alliance Pressure Ulcer Priority Setting Partnership | Research Involvement and Engagement | 2016 | 45 |
39 | The impact of involvement on researchers: a learning experience | Research Involvement and Engagement | 2017 | 42 |
40 | Engaging children and families in pediatric Health Research: a scoping review | Research Involvement and Engagement | 2019 | 42 |
41 | Lay involvement in the analysis of qualitative data in health services research: a descriptive study | Research Involvement and Engagement | 2016 | 41 |
42 | Engaging older adults in healthcare research and planning: a realist synthesis | Research Involvement and Engagement | 2016 | 41 |
43 | Reporting and appraising the context, process and impact of PPI on contributors, researchers and the trial during a randomised controlled trial - the 3D study | Research Involvement and Engagement | 2018 | 41 |
44 | Participatory action research to pilot a model of mental health service user involvement in an Ethiopian rural primary healthcare setting: study protocol | Research Involvement and Engagement | 2020 | 41 |
45 | Learning from patient involvement in a clinical study analyzing PET/CT in women with advanced breast cancer | Research Involvement and Engagement | 2020 | 41 |
46 | Inverting the patient involvement paradigm: defining patient led research | Research Involvement and Engagement | 2018 | 40 |
47 | Patient and public involvement in designing and conducting doctoral research: the whys and the hows | Research Involvement and Engagement | 2019 | 40 |
48 | Co-building a patient-oriented research curriculum in Canada | Research Involvement and Engagement | 2019 | 40 |
49 | Combining qualitative research with PPI: reflections on using the person-based approach for developing behavioural interventions | Research Involvement and Engagement | 2019 | 40 |
50 | More than a method: trusting relationships, productive tensions, and two-way learning as mechanisms of authentic co-production | Research Involvement and Engagement | 2021 | 40 |