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Building Shared End-of-Life Supports and Cross-Training for Hospice/Palliative and Intellectual Disability Services Providers

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End of Life and People with Intellectual and Developmental Disability

Abstract

Hospice and palliative care providers will benefit from cross-training in intellectual disability from intellectual disability service providers. Similarly, intellectual disability provider staff will benefit from insights, training, and supports from hospice and palliative care providers. Largely unaddressed is training needed to better support people with intellectual disability who live independently or with family, whether delivery is in a hospice and palliative care provider unit, a hospital, or in the person’s own home. This chapter reviews issues in palliative care provision and in formal cross-training packages from several countries. Guided by the WHO definition of palliative care (WHO, 2016), the chapter also identifies critical issues and how training should be modified and delivered to deal with the growing community-based and in-home provision of end-of-life care.

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Correspondence to Lisa A. Ferretti .

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Ferretti, L.A., McCarron, M., McCallion, P. (2022). Building Shared End-of-Life Supports and Cross-Training for Hospice/Palliative and Intellectual Disability Services Providers. In: Stancliffe, R.J., Wiese, M.Y., McCallion, P., McCarron, M. (eds) End of Life and People with Intellectual and Developmental Disability. Palgrave Macmillan, Cham. https://doi.org/10.1007/978-3-030-98697-1_8

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