Electronic patient-reported monitoring of symptoms during follow-up of ovarian cancer patients: a feasibility study | BMC Cancer | 2022 |
Patient-reported outcome measures in MS: Do development processes and patient involvement support valid quantification of clinically important variables? | Multiple Sclerosis Journal - Experimental, Translational and Clinical | 2022 |
Developing Patient-Centered Outcomes Metrics for Abdominal Surgery | | 2022 |
Development of the SF-6Dv2 health utility survey: comprehensibility and patient preference. | Journal of Patient-Reported Outcomes | 2022 |
Psychometric validation and interpretation of the Nocturia Impact Diary in a clinical trial setting. | Quality of Life Research | 2021 |
The Measurement Performance of the Parkinson's Disease Activities of Daily Living, Interference, and Dependence Instrument. | Frontiers in Neurology | 2022 |
Quality of Life and Endometrial Cancer | | 2022 |
'We do need to keep some human touch'-Patient and clinician experiences of ovarian cancer follow-up and the potential for an electronic patient-reported outcome pathway: A qualitative interview study. | European Journal of Cancer Care | 2022 |
Juvenile idiopathic arthritis. | Nature Reviews Disease Primers | 2022 |
Twitter Sentiment at the Hospital and Patient Level as a Measure of Pediatric Patient Experience | Open Journal of Pediatrics | 2021 |
Age-Adjusted Normative Values for Hip Patient-Reported Outcome Measures | American Journal of Sports Medicine | 2021 |
Validation of the Alopecia Areata Patient Priority Outcomes (AAPPO) Questionnaire in Adults and Adolescents with Alopecia Areata | Dermatology and Therapy | 2021 |
Development and Validation of a Visual Symptom-Specific Patient-Reported Outcomes Instrument for Adults with Cataract IOL Implants | American Journal of Ophthalmology | 2021 |
Assessing treatment tolerability for rheumatoid arthritis. Validation and practical applications of the ‘TOL-AR-18 questionnaire’ | Reumatología Clínica (English Edition) | 2020 |
Methodologies of PD Assessment: Scales | | 2020 |
An evidence-based methodology for systematic evaluation of clinical outcome assessment measures for traumatic brain injury | PLoS ONE | 2020 |
Inclusion of Patient-Reported Outcomes in Clinical Trials | Success in Academic Surgery | 2020 |
Patient-Important Outcome Measures in Surgical Care | | 2019 |
A Modular Health-Related Quality of Life Instrument for Electronic Assessment and Treatment Monitoring: Web-Based Development and Psychometric Validation of Core Thrive Items | Journal of Medical Internet Research | 2019 |
Quality of Life Assessment After HSCT for Pediatric and Adults | | 2019 |
Ease of Use and Medical Devices – Perceptions and Reality | Advances in Intelligent Systems and Computing | 2018 |
Patient-Centered Designs (and Outcomes) | | 2017 |
Quality of Life Assessments in the Development and Clinical Trials of New Antipsychotics: Pharmaceutical Industry Perspective | | 2016 |
Expectations and Outcomes of Genetics Services | | |
Psychometric properties of the itch numeric rating scale, skin pain numeric rating scale, and atopic dermatitis sleep scale in adult patients with moderate-to-severe atopic dermatitis | Health and Quality of Life Outcomes | 2021 |
Present state and future challenges in pediatric abdominal pain therapeutics research: Looking beyond the forest | World Journal of Gastrointestinal Pharmacology and Therapeutics | 2015 |
Disease monitoring strategies in inflammatory bowel diseases: What do we mean by "tight control"? | World Journal of Gastroenterology | 2019 |
Development and validation of a simple and multifaceted instrument, GERD-TEST, for the clinical evaluation of gastroesophageal reflux and dyspeptic symptoms | World Journal of Gastroenterology | 2017 |
Evaluation of an Internet-Based Behavioral Intervention to Improve Psychosocial Health Outcomes in Children With Insomnia (Better Nights, Better Days): Protocol for a Randomized Controlled Trial | JMIR Research Protocols | 2018 |
A Personalized eHealth Transition Concept for Adolescents With Inflammatory Bowel Disease: Design of Intervention | JMIR Pediatrics and Parenting | 2019 |
An evaluation of community assessment tools (CATs) in predicting use of clinical interventions and severe outcomes during the A(H1N1)pdm09 pandemic | PLoS ONE | 2013 |
Good practices for the translation, cultural adaptation, and linguistic validation of clinician-reported outcome, observer-reported outcome, and performance outcome measures | Journal of Patient-Reported Outcomes | 2020 |
A Qualitative Research for Defining Meaningful Attributes for the Treatment of Inflammatory Bowel Disease from the Patient Perspective | Patient | 2020 |
Measuring Patient-Based Outcomes: Setting Realistic Expectations When Balancing Functional Outcomes with Cancer Control | Current Clinical Urology | 2017 |
An Introduction to EQ-5D Instruments and Their Applications | | 2020 |
Health-Related Quality of Life in Adult and Pediatric Survivors of Hematopoietic Stem Cell Transplantation | | |
It doesn't stop at validation: patient reported outcome measures require ongoing and iterative development | Supportive Care in Cancer | 2021 |
Development of a New Patient-Reported Medication Adherence Instrument: Concerns Influencing Medication Adherence | Patient Preference and Adherence | 2021 |
Discrepancy in the perception of symptoms among patients and healthcare providers after lung cancer surgery | Supportive Care in Cancer | 2021 |
Monitoring Severity of Respiratory Syncytial Virus (RSV) in Infants and Young Children Using the Pediatric RSV Electronic Severity and Outcome Rating System (PRESORS): Results of Initial Quantitative Validation | Patient Related Outcome Measures | 2021 |
Psychometric Analysis from EMBODY1 and 2 Clinical Trials to Help Select Suitable Fatigue PRO Scales for Future Systemic Lupus Erythematosus Studies | Rheumatology and Therapy | 2021 |
Patient-Reported Outcomes Associated with Treatments for Testicular Cancer: A Systematic Review | Patient Related Outcome Measures | 2021 |
Definition of Clinically Meaningful Within-Patient Changes in POEM and CDLQI in Children 6 to 11 Years of Age with Severe Atopic Dermatitis | Dermatology and Therapy | 2021 |
Understanding the Meaning of Recovery to Patients Undergoing Abdominal Surgery | JAMA Surgery | 2021 |
Development and Psychometric Validation of BREAST-Q Scales Measuring Cancer Worry, Fatigue, and Impact on Work | Annals of Surgical Oncology | 2021 |
Patient-reported outcome measures for patients with nail conditions: a systematic review of the psychometric evidence | Archives of Dermatological Research | 2021 |
Mobile App-based documentation of patient-reported outcomes - 3-months results from a proof-of-concept study on modern rheumatology patient management | Arthritis Research and Therapy | 2021 |
PROMIS Global Health: Feasibility in home health | Quality of Life Research | 2021 |
Development of the Alopecia Areata Patient Priority Outcomes Instrument: A Qualitative Study | Dermatology and Therapy | 2021 |
Patient Experience With Fatigue and Qualitative Interview-Based Evidence of Content Validation of The FACIT-Fatigue in Systemic Lupus Erythematosus | Rheumatology and Therapy | 2021 |